Music Therapy in Children’s Palliative Care: Collaborative Family and Practitioner Voices
Book Details
- Publisher : Routledge
- Published : April 2025
- Cover : Paperback
- Pages : 176
- Category :
Forthcoming - Category 2 :
Individual Psychotherapy - Catalogue No : 97999
- ISBN 13 : 9781032657288
- ISBN 10 : 1032657286
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Giving voice to the perspectives of children and families with lived experience of children’s palliative care, Music Therapy in Children’s Palliative Care: Collaborative Family and Practitioner Voices explores the integral role of music therapy and its benefits for supporting child and family wellbeing within a range of children’s palliative care settings. This book places the voices of children and families supported by children’s palliative care at the centre as they articulate their own experiences of music therapy alongside music therapists to develop theory and practice in this area.
Through their unique, collaborative writing approach, contributing authors ensure that both perspectives of the therapeutic relationship - those of the families and the therapists - are represented throughout, offering a comprehensive view of their shared journey. Readers will benefit from learning about how music therapy may offer physical, emotional, social and spiritual support, aiming to enhance quality of life for both children and families. Equality, inclusion and belonging operate at the heart of this book, capturing the diversity of families that use palliative care services.
This book is a must read for any music therapist working within a children’s palliative care setting. It will also be a compelling text for those with lived experiences, practitioners, educators, students and researchers.
Reviews and Endorsements
The authors have uniquely captured the role of music therapy at all points of children and their families’ journeys through paediatric palliative care and beyond. They genuinely place the voices of children and families at the centre, capturing their narratives in a truly meaningful way. The value of meaning-making through collaborative song shines through and it is a privilege to read such intimate stories.
Julia Hackett, Associate Professor, Paediatric Palliative Care Research Group, University of York, UK
An incredible assemblage of sensitive and close to heart topics and scenarios etched under research, involving both service users and service providers reflecting their lived experiences of the therapeutic role of music in children’s palliative care. This book will expand the horizons of readers enabling them to have insight into an emotionally turbulent world of families of children with life shortening conditions facing multifaceted challenges on a daily basis with music helping them in its management and playing a soothing role. A must read!
Riffat Iqbal, a full time carer now, after being a teacher, interpreter, playscheme deputy manager for special needs children, a tutor of Urdu language and customer service advisor. A cancer survivor, also a proud mother of 11 years old son with complex needs and a bereaved parent to an adult daughter
The value of memory making when you are caring for a child who you know is going to have a short (and complex) life is incredibly difficult. We weave therapies and activities into our day to day. Clarity often only comes after the event. Vicky and Jules have gathered together the threads, from first hand experiences, how music and music therapy plays a part in giving meaning and purpose to both child and parent. It was Shakespeare who said, ‘If music be the food of love, play on’.
Tussie Myerson, bereaved mother and advocate and campaigner for families caring for children with life limiting conditions
Collaboration and reciprocity are at the heart of this book. The co-authored stories integrate voices from parents and music therapists to offer unique and valuable insights into the role that music and music therapy play in children’s palliative care.
In sharing the stories of families and therapists the authors highlight the development of music therapy in children’s palliative care and celebrate the mutual growth and learning that can occur through music, listening, dialogue and relationships.
Dr Philippa Derrington, Music Therapist and Programme Lead MSc Music Therapy Queen Margaret University
Table of Contents
Foreword
Lesley Schatzberger
Introduction
Victoria Kammin and Julie Russell
1. The Need for Belonging
Victoria Kammin and Julie Russell
2. Lines of communication: creating continuing bonds on the neonatal unit
Kirsty Jane and Mariam Titus, Devang Ram Mohan
3. Sophie’s Wonderful World: The Impact of Music Therapy on a Family Caring for a Life Limited Child
Wendy de St Paer and Sophie Nguyen’s Parents
4. Freya’s Light
Ceridwen Rees and Sarah Jane Dawes
5. The Power of Connection: Family-Centred Virtual Music Therapy Groups
Victoria Swan and Tom Grey
6. ‘Alive, brave and free. That’s what music means to me’: Celebrating the diverse voices of a children’s hospice community through collaborative songwriting
Rachel Drury, Polly Harris, Janet McLachlan and the CHAS community
7. Music Therapy in Paediatric Palliative Care: A link between the Hospice and Hospital
Cathy Ibberson and Joanna Chambers
8. "Things change and that's the way it is": Therapeutic songwriting with young adults transitioning from paediatric palliative care
Giorgos Tsiris and Daphne Rickson
9. The Gods of Music
Victoria Kammin and Nicky Hale
About the Editor(s)
Victoria Kammin is a music therapist who specialises in paediatric palliative care from Surrey, UK. She is Director of Resonance Creative Therapy, Lecturer on the MSc Music Therapy training at Queen Margaret University Edinburgh and undertaking her PhD at the University of York with the Paediatric Palliative Care Research Group.
Julie Russell is a freelance illustrator, teacher and lived-experience practitioner from Essex, UK. She has been married for over 25 years, is mother to a teenage son, and a bereaved parent to a toddler. Julie has given motivational talks about her family’s experiences with paediatric palliative care and is a member of the Family Advisory Board at Martin House Research Centre, University of York.
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